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For Families

Research YOU can participate in!

From time to time, researchers contact us looking for YOUR input.

Current opportunities include research looking at:

  • Fear of Cancer Recurrence (teens and young adults)
  • Leveraging human rights to clarify the risk of genetic discrimination in pediatric oncology (parents)
  • Making Moves (kids aged 8-25 and parents)
  • SickKids MetMedCan Study (brain tumour families)
  • Follow-Up Care Experiences (parents)
  • How Children Want to Know (kids aged 8-14)

See below for more details on each of these research opportunities.

Fear of Cancer Recurrence

You may be eligible to participate if you are:

  • Aged 13-25
  • Diagnosed with cancer before age 18
  • Currently live in Canada

If you decide to participate you will take part in:

  • 6 weekly online sessions
  • brief surveys
  • a short interview about your experience.

Learn more: scan the QR code or go to: tinyurl.com/fortaeya

Posted: September 2026

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Leveraging human rights to clarify the risk of genetic discrimination in pediatric oncology

You may be eligible to participate if you are:

  • a parent or legal guardian of a child who is receiving or has received pediatric cancer in Canada.

If you decide to participate, you'll be taking a 10-12 minute survey to help researchers better understand parents knowledge and perceptions of genetic discrimination, awareness of existing legal protections, and how these factors may influence decisions about research participation.

Learn more: scan the QR code or contact the study co-ordinator.

Posted: September 2026.
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Making Moves

A poster encouraging kids and parents to participate in a study around physical activity. Poster includes QR codes needed to participate.

You may be eligible to participate if you are:

  • a young person (8-25) who was been diagnosed with cancer as a child
  • a parent of a young person who has been diagnosed with cancer as a child

If you decide to participate, you'll be taking a 10-minute de-identified survey asking about your physical activity levels and preferences, to help develop engaging, age-appropriate excerise resources.

Learn more: scan the QR code.

Posted: June 2026.

SickKids MetMedCan Study

You may be eligible to participate if you are:

  • a family whose child (ages 7-21) has been diagnosed with a brain tumour
  • willing to participate in a clinical trial

If you decide to participate, you’ll be taking part in a clinical trial to improve the standard of care given after treatment for a brain tumour.

Learn more: email the study team.

Posted: January 2026.

A question: "Have you or your child finished treatment for a brain tumour?"

Follow-Up Care Experiences

You may be eligible to participate if you are:

  • Diagnosed with cancer, in Canada, before 18 years old
  • Diagnosed at least 5 years ago and/or completed treatment at least 2 years ago
  • Have not received cancer-specific follow-up care in 2+ years, or never received follow-up care.

If you decide to participate, you’ll be talking one-one-one with a research team member about your experiences.

Learn more: email the study team.

Posted: January 2026.

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A poster calling all survivors of childhood cancer.

How Children Want to Know

You may be eligible to participate if you are:

  • A Canadian child
  • Aged between 8-14
  • A childhood cancer survivor OR
  • A sibling or close friend of a childhood cancer survivor
  • Who has parental permission to participate

If you decide to participate, you’ll be answering a survey that takes approximately 15-20 minutes to complete. By participating, you’ll help shape how cancer information is shared with young people across Canada.

Learn more: visit the survey website.

Posted: November 2025.

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A poster for a McGill Research Opportunity.