Alisha Jilani Foundation

In honour of Alisha Noor Jilani, who passed away June 2, 2020, the family is raising funds to ease the suffering of others going through the journey of childhood cancer treatment.

Alisha’s Story

In May 2019, shortly after her first birthday, Alisha was diagnosed with a rare and aggressive brain cancer called ATRT. For her treatment, we moved from our home in London ON to Toronto for six months and stayed at the Ronald McDonald House, which was an invaluable resource for us. During her treatment at SickKids hospital, Alisha underwent numerous brain surgeries and some of the harshest chemo regiments that can be administered on children, including high-dose chemo and bone marrow transplant. In December 2019, her treatment at SickKids came to an end and we came back home.

Two weeks later, her tumour came back.

This time, Alisha’s treatment resumed at London’s Children’s Hospital. Alisha was happiest at home and all efforts were directed to ensure that we, as her parents, were equipped to manage her care whenever she wasn’t going through active chemo treatment in hospital. Despite this, she needed blood transfusions once a week, every week, for six months. As COVID19 gripped the world, hospitals became an incredibly isolating experience.

Our little soldier fought on through thick and thin but the course of treatment eventually took a toll on her little body and she passed away shortly after her second birthday.

Her fighting spirit however lives on in the impact she’s had on the countless people who heard about her journey.

This Foundation will be her Legacy.

Alisha Noor Jilani (May 4, 2018 – June 2, 2020)